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Selina Brudnicki



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    OS03 - Secured Communication in Circle of Care (ID 4)

    • Event: e-Health 2019 Virtual Meeting
    • Type: Oral Session
    • Track:
    • Presentations: 1
    • Coordinates: 5/27/2019, 10:30 AM - 11:30 AM, Pod 5
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      OS03.04 - Blockchain: Activating patients to take control in our health system (ID 376)

      Selina Brudnicki, University Health Network; Toronto/CA

      • Abstract

      Purpose/Objectives:
      Patients, caregivers, and care teams are challenged with the fragmented health system which prevents easy movement and sharing of patient health records. This results in barriers for patients in managing and partnering in their health, and timely decision-making to determine best treatment options. Now imagine an opportunity where patients can securely control, share and monitor the use of their data! A consortium of Blockchain Accelerator Program founders representing healthcare, government and private industry is in the early stages of co-design with patient, caregiver, clinician, research and privacy representatives to deliver a minimal viable product (MVP) that will start to break down fragmented health systems. The MVP will demonstrate how a patient can control, share and monitor the use of aspects of their health data to (i) healthcare providers, (ii) caregivers, including family and (iii) research institutions. The long-term goal will be to enable patients to become more active participants in managing their health; contribute to data-driven insights to improve communication, safety and health outcomes; and support research to find effective treatments and cures.


      Methodology/Approach:
      Co-design with patient, caregiver, clinician, research and privacy representatives ensures that varied perspectives are considered to inform the design and delivery of the MVP. An architecture solution framework has been established to enable patient consent, control and access of their own health data from government, healthcare and private sector sources. This MVP demonstrates how a patient can control, share and monitor the use of aspects of their health data to (i) healthcare providers, (ii) caregivers, including family and (iii) research institutions. The project will undergo frequent Stage Gate Reviews to assess and evaluate performance, lessons learned and risks to ensure ongoing delivery of value for patients and the health system.


      Finding/Results:
      Findings and results are three-fold: 1. Delivery of a working MVP and prototype through co-design with patient, caregiver, clinician, research and privacy representatives. This ensures the creation of a usable and value-driven product, taking into account privacy and consent considerations as part of patient control of their own health data; 2. Findings, learnings and value of the project are transparent and shared with key stakeholders and the general public as the project progresses. They have opportunities to dialogue and inform future investment decisions; and 3. Future strategy and planning considerations are well-documented and range from examining and addressing identity management and authentication, to ensuring data governance and trust in a future business network. This MVP informs the next stage of the project to establish a formal Patient Control Blockchain Consortium that oversees data governance, and ensures that a future business network is transparent, trusted and secure. Grounds for further investment can then be substantiated to pilot the Patient Control Blockchain in a real-life setting and address movement of data.


      Conclusion/Implications/Recommendations:
      Through patient control of their own data, a collaborative partnership made up of health care organizations, government, and private industry can be established in order to advance health ecosystem partnerships, accelerate innovation in medical research and inform efforts to deliver value for patients and the health system.


      140 Character Summary:
      This session will share results of a Patient Control of Data Blockchain project that enables patients to securely consent, share and monitor use of their health data.