Start Your Search

Tracie Risling



Author of

  • +

    EP01 - Evaluating Application Implementations (ID 40)

    • Event: e-Health 2017 Virtual Meeting
    • Type: e-Poster
    • Track: Clinical and Executive
    • Presentations: 1
    • +

      EP01.06 - Patient Engagement, Empowerment, and Activation: Refining Performance Measurement in e-Health (ID 256)

      Tracie Risling, University of Saskatchewan ; Saskatoon/CA

      • Abstract
      • Slides

      Purpose/Objectives: Healthcare literature is inundated with publications promoting the promise of e-health tools and interventions in delivering improved patient outcomes. Frequently, these reports feature discussion of patient engagement, empowerment, activation, or some combination therein. The issue that appears to be arising however, is the indistinct use of these terms in the science of e-health, particularly regarding how the influence of technological solutions are measured and reported. The purpose of this research was to reexamine these critical concepts and unite both academic and software development perspectives to more effectively operationalize these measures for future research and practice.

      Methodology/Approach: A scoping review on patient empowerment with a particular focus on the measurement of this concept in relation to e-health intervention was conducted. During the course of this review the overlapping, and in certain instances, interchangeable use of empowerment and engagement emerged. Literature featuring patient activation, and more specifically the use of the PAM or Patient Activation Measure, completed the concept trifecta. Using the review as a foundation, an interdisciplinary team was formed with both academic research and ICT practice representation. Through this collaboration, an in-depth analysis of the concepts of patient engagement, empowerment, and activation was undertaken with the express purpose of harmonizing terminology between the domains and providing a means of distinct application and measurement of these concepts for future use.

      Finding/Results: We have concluded that while empowerment, engagement, and activation are closely interrelated they describe very different aspects of patient participation in the process of healthcare self-management. Ongoing confusion of these concepts, especially in their operationalization and measurement, risks a dilution of e-health science and potentially the advancement of patient-focused intervention. The integration of academic rigour and software development best practice has resulted in a new conceptualization of these key aspects of performance measurement and a more precise framework on which to move forward.

      Conclusion/Implication/Recommendations: The ongoing evolution of e-health technology will increasingly require joint undertakings between healthcare, and computer science/software development professionals. This should include the critical work of efficacy assessment and detailed performance measurement that serves the needs of both domains. By recognizing crucial differences in the concepts of patient engagement, empowerment, and activation and delivering a collaborative view on the mechanisms underlying each, we have proposed a framework for clear and concise future measure. This work can support researchers and health informatics professionals in more consistent and exact evaluation of the degrees to which patients are involved in healthcare self-management and decision making, and ultimately, the quality and success of that involvement.

      140 Character Summary: ICT meets academia in a collaborative analysis and reconceptualization of patient engagement, empowerment, and activation including future use and measure.

      Only Active Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login or select "Add to Cart" and proceed to checkout.

  • +

    OS13 - PHR Storms Across Canada (ID 19)

    • Event: e-Health 2017 Virtual Meeting
    • Type: Oral Session
    • Track: Clinical and Executive
    • Presentations: 1
    • Coordinates: 6/06/2017, 01:00 PM - 02:00 PM, Room 201CD
    • +

      OS13.03 - Exploring Patient Empowerment: The eHealth Saskatchewan Citizen Health Information Portal (ID 365)

      Tracie Risling, University of Saskatchewan ; Saskatoon/CA

      • Abstract
      • Slides

      Purpose/Objectives: A strong commitment to patient empowerment has been identified as a crucial element in the achievement of lasting patient-centered transformations within healthcare systems. The promise of e-health interventions in supporting patient empowerment has been widely touted, however the concept itself remains ambiguous and lacking in substantiated concrete measures. Further, very little has been done to engage with patients to ascertain their views on empowerment, especially within an e-health context. In this study, participants enrolled in a pilot deployment of the e-Health Saskatchewan Citizen Health Information Portal (CHIP) had an opportunity to engage with researchers from the University of Saskatchewan to share their views on engagement, empowerment, and their introduction to the CHIP.

      Methodology/Approach: This research employed a mixed methods approach in the exploration of patient empowerment and the CHIP in Saskatchewan. Led by an extensive scoping review on patient empowerment, specifically focused on e-health interventions including portal projects, the study also incorporated qualitative data from participant interviews. Interpretive description was used to analyze the qualitative results and provide a participant driven view of empowerment in relation to the use of the citizen portal. Lastly, the research team integrated the results of the scoping review with key findings on empowerment, to develop a pilot tool to support a more focused and precise measure of empowerment in e-health initiatives.

      Finding/Results: This study has produced an e-health focused review of patient empowerment and a newly proposed pilot measure that can support further examination of the influence of this vital concept. While ongoing testing and validation of the measure will need to be undertaken, this research provided a means to maximize patient voice in the instrument development process, a unique consideration in the examination of this concept within the e-health context. The results of a scoping review further guided the delivery of the proposed measure.

      Conclusion/Implication/Recommendations: The promise of e-health intervention in delivering improved opportunities for patient empowerment requires more substantiation. Often the concept of patient empowerment is introduced in association with researched interventions, but reported measures focus on a host of other outcomes without specifically addressing the empowerment component. Frequent notations have been made about the complex nature of the concept seemingly to serve as an explanation for inconsistencies in how it has been measured. Patient empowerment, although extensively examined, clearly remains difficult to operationalize and evaluate. Since patients are the object of these empowerment endeavours, it seems crucial to allow patient voice to direct the definition of key aspects of empowerment in e-health intervention. This research has begun that patient-directed consideration of empowerment in the hopes that it will provide a more substantial and meaningful foundation on which to advance this measure in future study.

      140 Character Summary: A scoping review and participant voice directed this study of patient empowerment in e-health and the resultant development of a new pilot measure for this concept.

      Only Active Members that have purchased this event or have registered via an access code will be able to view this content. To view this presentation, please login or select "Add to Cart" and proceed to checkout.