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Catherine Chan

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  • OS29 - Realizing the Promise of "Big" Data (ID 34)

    • Event: e-Health 2017 Virtual Meeting
    • Type: Oral Session
    • Track: Clinical and Executive
    • Presentations: 1
    • Coordinates: 6/07/2017, 10:30 AM - 12:00 PM, Room 203CD
    • OS29.01 - Measuring Patient Experience Across the Cancer Journey Through Data Linkage (ID 90)

      Catherine Chan, Cancer Care Ontario (CCO); Toronto/CA

      • Abstract
      • Slides

      Purpose/Objectives: Capturing information on patient experience at the point of care gives patients a voice in driving quality improvement, aligning with Cancer Care Ontario’s (CCO) goal in the Ontario Cancer Plan IV to ensure the delivery of responsive and respectful care across the cancer care continuum. Electronic Patient Reported Experience Measures (ePREMs) is an electronic platform that hosts tools for the systematic collection of cancer patient feedback in near real-time at any point in their journey. Your Voice Matters (YVM) was the first validated questionnaire launched through ePREMs in March 2016, asking patients to share their experience from their most recent visit to the hospital or Regional Cancer Centre (RCC). For the first time in Ontario, the ability to link ePREMs data to other administrative databases enables a holistic view of the cancer patient experience, thereby identifying ways to improve the cancer system.

      Methodology/Approach: The ePREMs YVM Screening Rate is a measure derived by linking ePREMs data with administrative data collected on cancer activity at each RCC. This linkage allows CCO to quantify the proportion of cancer patients that completed an YVM questionnaire out of all visits to an RCC in a given month. The Screening Rate draws on three CCO data holdings: (1) ePREM; (2) Activity Level Reporting (ALR); (3) ISAAC Your Symptoms Matter (YSM). The rate numerator, count of patients with a complete YVM questionnaire in a given reporting month, is calculated using ePREMs and YSM data. Patients are considered to have completed the questionnaire if they viewed all 28 assessment questions. Any patient record lacking identifier information, including invalid health card numbers, missing facility information, or respondents with non-cancers (such as benign) are excluded from the numerator. The ALR database records each patient encounter with the cancer system, whether it be for treatment or outpatient oncology consultations/assessments (clinic visits). ALR data is used to calculate the rate denominator, the count of unique cases that had a clinic visit/treatment in a given reporting month.

      Finding/Results: As of October 2016, 9 of 14 RCCs in Ontario were administering YVM. The data from the three CCO data sources were linked to derive screening rates for each of the participating centres. The linkage provided an early view on the spread of YVM throughout the province.

      Conclusion/Implication/Recommendations: The YVM Screening Rate draws on three data sources that are collected independently, but together provides a more fulsome picture of the patient’s visit and experience across the cancer care continuum. The ePREM YVM Screening Rate highlights the potential to better understand the patient experience. The collection of linkable PREMs data will allow CCO to understand and improve on the cancer patient experience across any phase, disease site, age, gender, clinician seen, and type of treatment. This will enable CCO to map patient experiences to specific aspects within the cancer care continuum, and ultimately tailor quality improvement interventions to patient preferences.

      140 Character Summary: Data linkage of Electronic Patient Reported Experience Measures data enhances the understanding and improvement of patient experience at all points of care.

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