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Einat Danieli

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    OS06 - Innovations to Process Non Digital Data (ID 24)

    • Event: e-Health 2019 Virtual Meeting
    • Type: Oral Session
    • Track: Technical/Interoperability
    • Presentations: 1
    • Coordinates: 5/27/2019, 03:30 PM - 04:30 PM, Pod 5
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      OS06.04 - Dementia Talk App - Empowering Dementia Caregivers through Technology  (ID 264)

      Einat Danieli, 60 Murray St L1-012, Sinai Health System ; Toronto/CA

      • Abstract
      • Slides

      Dementia Talk App: An award winning smartphone App designed to support dementia caregivers in tracking and managing challenging behaviours and in enhancing their communication with other care providers in the circle of care. Nearly 12% of Canadians are caregivers for a person with dementia. Up to 90% of people with dementia (PWD) experience significant behavioural and psychological symptoms (BPSD) that challenge and upset caregivers. Currently, there is no easy way for caregivers to manage and track behaviour-related symptoms in the care recipient, making it difficult to improve care and share information across the circle of care. OBJECTIVES: This presentation will discuss the development of a mobile application called the Dementia Talk App, designed to empower dementia caregivers to manage and track behaviours in the person with dementia as well as enhance communication among care providers. The presentation will showcase key features of the App and share highlights from beta testing results to demonstrate the importance of caregiver driven development process in creating meaningful and accessible digital solutions for clients and their caregivers.

      This qualitative study involved 16 caregivers for PWD, recruited through the Reitman Centre Sinai Health System. Participants were asked to use the application for a period of 3 weeks, starting from the date that they received the link. Once the 3-week trial period is completed, a semi-structured phone interview was conducted to seek feedback from users in three main areas: 1. technology and usability 2. clarity of the content 3. The level of relevance of the App to caregivers? concerns in dealing with behaviour-related challenges. Their responses were summarized in written notes and analyzed and organized in main themes using the ?framework analysis? approach. Inclusion criteria: Age 18+; caregiver to a PWD; PWD presenting behavioural symptoms; Grade 3 literacy level; English speaking; ability to use one of the following platforms: Web, Android phone/Tablet; Apple iPhone/iPad. Exclusion criteria: Under 18 years of age; Not actively involved in caring for someone with dementia; PWD not demonstrating any behavioural symptoms; Less than Grade 3 literacy level; not English speaking; Unable to use any of the following platforms: Web, Android phone/Tablet; Apple iPhone/iPad

      16 eligible caregivers were recruited to participate in the study, 1 participant dropped out for personal reasons. Complete data was obtained from 10/15 participants. All participants that were interviewed agreed that the content of the App was relevant to their concerns as caregivers, and most found the triggers and coping strategies to be very useful. This is a validation of the contents, as one of the most important aspects of the application for its success. Limitations: The 3-week trial period may not have been enough time to completely evaluate the usability of the app. Small sample size.

      Conclusions: Overall, the feedback received was overwhelmingly positive and there is great potential for the app as a meaningful tool for caregivers and other stakeholders in dementia care. Further evaluation needed to validate benefits of the application and long term impact with a larger sample size for a longer period of time.

      140 Character Summary:
      Dementia Talk App: An App designed to support dementia caregivers in tracking and managing care and enhancing communication with members of the circle of care.

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