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RF03 - Patient Empowerment: It's about Time! (ID 45)
- Event: e-Health 2019 Virtual Meeting
- Type: Rapid Fire Session
- Track: Clinical and Executive
- Presentations: 1
- Coordinates: 5/28/2019, 02:30 PM - 03:30 PM, Pod 8
RF03.03 - In Pursuit of Patient Empowerment: Collaborative Advances in Measurement Design (ID 281)
Purpose/Objectives: Patient empowerment has emerged as a crucial element in the ongoing evolution of healthcare delivery. Connections have been established between patient empowerment and improved engagement in care, commitment to healthy behaviours, and more active participation in shared decision-making. Research supports patient empowerment as a means to improve outcomes and lower healthcare costs. The challenge in advancing empowerment interventions however, is a lack of clarity regarding how best to capture the concept in a comprehensive and scientifically sound measure. The purpose of this research is to collaborate with patients to address this urgent measurement need in empowerment research. This presentation includes results from the first year and phase of this research where Q methodology was employed to engage participants in identifying priority aspects of patient empowerment for inclusion in a newly designed measure.
Methodology: This study is being conducted in three phases, each with a distinct methodological focus. In the first phase, Q methodology was used to support patients in sharing their views of empowerment as well as prioritizing key characteristics of the concept for operationalization. Q methodology unites the strengths of qualitative and quantitative research to capture personally held subjective views often expressed by attitudes, appraisals, or through reflections on life experiences. In this approach, participants form a P set, and rank order statements contained in a Q set that is then subjected to factor analysis. The Q set for this project was drawn from past pilot work on patient empowerment, led by members of this study team, with patients who had been given access to their electronic health record (EHR,) and through an extensive review of the literature on empowerment, engagement, and activation.
Results: More than 100 patients completed the Q-sort exercise representing a broad range of ages, reported health status, and a self-identified technology adoption using Rogers? Diffusion of Innovation Theory. In addition to completing the Q-sort exercise, participants provided a 5-minute digital download interview where they spoke to choices made during the sort. This interview data was coded and themed using a qualitative approach. The Q-sort data was processed with software specifically designed for the method, producing factor analysis results which were then used to identify essential elements for a new patient empowerment measure.
Recommendations and Conclusions: Patient empowerment is a key aspect of the trifecta of patient empowerment, engagement, and activation, and yet there are significant deficiencies in existing measurement for this concept in particular. This first phase of this research has revealed patient selected essentials for measuring patient empowerment within the digital health context. These elements and the emerging measurement tool will be detailed in this presentation, along with qualitative commentary from patients themselves on the important role of empowerment and digital health in their daily lives.
140 Character Summary:
Patient voice was needed to correct deficiencies in empowerment measure and this presentation includes patient identified essentials in developing a new approach